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nshd:dsctte [21/03/2018 @ 10:40] – adammoore | nshd:dsctte [23/05/2023 @ 13:04] (current) – director | ||
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==== NSHD Data Sharing Committee ==== | ==== NSHD Data Sharing Committee ==== | ||
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All proposals are considered by members of the LHA/NSHD Data | All proposals are considered by members of the LHA/NSHD Data | ||
Sharing Committee and by specialist reviewers if necessary. Proposals are considered by | Sharing Committee and by specialist reviewers if necessary. Proposals are considered by | ||
- | the LHA/NSHD Data Sharing Committee on a monthly | + | the LHA/NSHD Data Sharing Committee on a regular |
As a general guideline, successful research proposals meet the following criteria: | As a general guideline, successful research proposals meet the following criteria: | ||
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[[mrclha.swiftinfo@ucl.ac.uk|contact us]]. | [[mrclha.swiftinfo@ucl.ac.uk|contact us]]. | ||
- | The LHA/NSHD Data Sharing Committee meets once a month to assess all new applications | + | The LHA/NSHD Data Sharing Committee meets regularly |
to use NSHD data. In normal circumstances a decision will be taken by the LHA/NSHD Data | to use NSHD data. In normal circumstances a decision will be taken by the LHA/NSHD Data | ||
- | Sharing Committee within two months | + | Sharing Committee within two weeks of receipt of the proposal, however this is dependent |
upon the timing of the original proposal in relation to the meetings. Applicants will be | upon the timing of the original proposal in relation to the meetings. Applicants will be | ||
notified by email if their application to use the data will be delayed beyond these time lines. | notified by email if their application to use the data will be delayed beyond these time lines. | ||
\\ \\ | \\ \\ | ||
- | === Rejected proposals and appeals procedure | + | |
- | In the unusual situation that the LHA/NSHD Data Sharing Committee cannot immediatley | + | === Facilitated collaborations |
- | approve a proposal, the external researcher can appeal, in the first instance | + | |
- | of the LHA. The Director may decide to grant the appeal or to refer it to an external | + | |
- | independent body. Full details of the appeals procedure will | + | |
- | be supplied to the applicants should this prove necessary. | + | |
Facilitated collaborations are required in the following circumstances and | Facilitated collaborations are required in the following circumstances and | ||
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exhaustive. | exhaustive. | ||
* Proposals that require access to a specialist database created by a key collaborator or have required significant investments in time by the study team | * Proposals that require access to a specialist database created by a key collaborator or have required significant investments in time by the study team | ||
- | * Proposals that require access to sensitive data. Sensitive data include, but are not limited to, the cause and date of death of a study member, data on residential or emigration history, and medical and other information with small cell counts (e.g. some ICD hospital admissions, or childhood enuresis variables) | + | * Proposals that require access to sensitive data. Sensitive data include, but are not limited to, the cause and date of death of a study member, data on residential or emigration history, cancer registration information or other data obtained from NHS Digital, and medical and other information with small cell counts (e.g. some ICD hospital admissions, or childhood enuresis variables) |
- | * Proposals requiring access to data or meta-data that have not yet been through vigorous quality | + | * Proposals requiring access to data or meta-data that have not yet been through vigorous quality |
- | * Proposals requiring access to extensive biomedical data or that significantly overlap with the current scientific programmes of the NSHD study team | + | * Proposals requiring access to extensive biomedical data |
- | | + | |
+ | \\ | ||
+ | === Rejected proposals and appeals procedure === | ||
+ | In the unusual situation | ||
+ | approve a proposal, the external researcher can appeal, in the first instance | ||
+ | of the LHA. The Director may decide to grant the appeal or to refer it to an external | ||
+ | independent body. Full details of the appeals procedure will | ||
+ | be supplied to the applicants should this prove necessary. | ||