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nshd:dsctte [20/03/2018 @ 09:50] – adammoore | nshd:dsctte [23/05/2023 @ 13:04] (current) – director | ||
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==== NSHD Data Sharing Committee ==== | ==== NSHD Data Sharing Committee ==== | ||
---- | ---- | ||
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All proposals are considered by members of the LHA/NSHD Data | All proposals are considered by members of the LHA/NSHD Data | ||
Sharing Committee and by specialist reviewers if necessary. Proposals are considered by | Sharing Committee and by specialist reviewers if necessary. Proposals are considered by | ||
- | the LHA/NSHD Data Sharing Committee on a monthly | + | the LHA/NSHD Data Sharing Committee on a regular |
As a general guideline, successful research proposals meet the following criteria: | As a general guideline, successful research proposals meet the following criteria: | ||
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- | Researchers are encouraged to view the [[approved|list of previously approved]] data sharing proposals | + | Researchers are encouraged to view the [[approved|list of previously approved data sharing proposals]] |
to assess points of similarity or overlap with already existing projects. | to assess points of similarity or overlap with already existing projects. | ||
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may be subject to a charge to cover the additional costs incurred by the LHA. Any such | may be subject to a charge to cover the additional costs incurred by the LHA. Any such | ||
costs will be notified in advance. | costs will be notified in advance. | ||
+ | \\ \\ | ||
- | ==== Correspondence and timings for review of submissions | + | === Correspondence and timings for review of submissions === |
Receipt of your application will be notified using the email address you supplied. If you have | Receipt of your application will be notified using the email address you supplied. If you have | ||
not received an electronic confirmation of your submission within 10 working days please | not received an electronic confirmation of your submission within 10 working days please | ||
- | contact | + | [[mrclha.swiftinfo@ucl.ac.uk|contact us]]. |
- | The LHA/NSHD Data Sharing Committee meets once a month to assess all new applications | + | The LHA/NSHD Data Sharing Committee meets regularly |
to use NSHD data. In normal circumstances a decision will be taken by the LHA/NSHD Data | to use NSHD data. In normal circumstances a decision will be taken by the LHA/NSHD Data | ||
- | Sharing Committee within two months | + | Sharing Committee within two weeks of receipt of the proposal, however this is dependent |
upon the timing of the original proposal in relation to the meetings. Applicants will be | upon the timing of the original proposal in relation to the meetings. Applicants will be | ||
notified by email if their application to use the data will be delayed beyond these time lines. | notified by email if their application to use the data will be delayed beyond these time lines. | ||
+ | \\ \\ | ||
+ | |||
+ | === Facilitated collaborations === | ||
+ | |||
+ | Facilitated collaborations are required in the following circumstances and | ||
+ | may involve additional conditions for use of the data: this list is indicative rather than | ||
+ | exhaustive. | ||
+ | * Proposals that require access to a specialist database created by a key collaborator or have required significant investments in time by the study team | ||
+ | * Proposals that require access to sensitive data. Sensitive data include, but are not limited to, the cause and date of death of a study member, data on residential or emigration history, cancer registration information or other data obtained from NHS Digital, and medical and other information with small cell counts (e.g. some ICD hospital admissions, or childhood enuresis variables) | ||
+ | * Proposals requiring access to data or meta-data that have not yet been through vigorous quality assurance protocols in place and will require a significant amount of time to check and/or clean | ||
+ | * Proposals requiring access to extensive biomedical data | ||
+ | |||
+ | \\ | ||
=== Rejected proposals and appeals procedure === | === Rejected proposals and appeals procedure === | ||
- | In the unusual situation that the LHA/NSHD Data Sharing Committee cannot | + | In the unusual situation that the LHA/NSHD Data Sharing Committee cannot |
approve a proposal, the external researcher can appeal, in the first instance | approve a proposal, the external researcher can appeal, in the first instance | ||
of the LHA. The Director may decide to grant the appeal or to refer it to an external | of the LHA. The Director may decide to grant the appeal or to refer it to an external | ||
independent body. Full details of the appeals procedure will | independent body. Full details of the appeals procedure will | ||
be supplied to the applicants should this prove necessary. | be supplied to the applicants should this prove necessary. | ||
- | |||
- | Facilitated collaborations are required in the following circumstances and | ||
- | may involve additional conditions for use of the data: this list is indicative rather than | ||
- | exhaustive. | ||
- | * Proposals that require access to a specialist database created by a key collaborator or have required significant investments in time by the study team. | ||
- | * Proposals that require access to sensitive data. Sensitive data include, but are not limited to, the cause and date of death of a study member, data on residential or emigration history, and medical and other information with small cell counts (e.g. some ICD hospital admissions, or childhood enuresis variables). | ||
- | * Proposals requiring access to data or meta-data that have not yet been through vigorous quality assurances protocols in place and will require a significant amount of time to check and/or clean. | ||
- | * Proposals requiring access to extensive biomedical data or that significantly overlap with the current scientific programmes of the NSHD study team. | ||
- | * Proposals from researchers outside the UK. | ||