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nshd:dsctte [19/01/2018 @ 16:54]
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nshd:dsctte [04/07/2019 @ 09:39] (current)
adammoore
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- +[[:​wiki:​Home|{{wiki:​MRC-LHA-header-graphic.png}}]] 
-====== NSHD Data Sharing Committee ​====== +==== NSHD Data Sharing Committee ==== 
- +---- 
-==== The Review ​process ​==== +=== The review ​process === 
-All proposals are reviewed ​by members of the LHA/NSHD Data+All proposals are considered ​by members of the LHA/NSHD Data
 Sharing Committee and by specialist reviewers if necessary. Proposals are considered by Sharing Committee and by specialist reviewers if necessary. Proposals are considered by
-the LHA/NSHD Data Sharing Committee on a monthly ​basis. This meeting is chaired by the +the LHA/NSHD Data Sharing Committee on a regular ​basis. ​
-Director of the NSHD and consists of senior LHA scientists and NSHD operational heads.+
  
 As a general guideline, successful research proposals meet the following criteria: As a general guideline, successful research proposals meet the following criteria:
  
-  * No breach of confidence should be incurred. +  * No breach of confidence should be incurred 
-  * The use of the data should be within the bounds of consent given by cohort members, and comply with MRC guidance on ethics and research governance. +  * The use of the data should be within the bounds of consent given by cohort members, and comply with MRC guidance on ethics and research governance 
-  * There should be no risk to the viability or reputation of the study from use of the data supplied. +  * There should be no risk to the viability or reputation of the study from use of the data supplied 
-  * The proposal should be from bone fide researchers working within an MRC recognised organisation who have the necessary expertise to undertake the project. In the case of students applying for access, their supervisor must be a co-applicant and ensure that appropriate academic and data security guidance are adhered to at all times.+  * The proposal should be from bone fide researchers working within an MRC recognised organisation who have the necessary expertise to undertake the project. In the case of students applying for access, their supervisor must be a co-applicant and ensure that appropriate academic and data security guidance are adhered to at all times
  
-  ​ + 
-When proposals ​are similar ​to projects already ​approved, ongoing or are similar or +Researchers ​are encouraged ​to view the [[approved|list of previously ​approved ​data sharing proposals]] 
-complementary ​to LHA scientific programmes, researchers are encouraged to collaborate on +to assess points of similarity or overlap with already existing projects.
-a common project.+
  
 The LHA/NSHD Data Sharing Committee reserves the right to prioritise applications where The LHA/NSHD Data Sharing Committee reserves the right to prioritise applications where
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 may be subject to a charge to cover the additional costs incurred by the LHA. Any such may be subject to a charge to cover the additional costs incurred by the LHA. Any such
 costs will be notified in advance. costs will be notified in advance.
 +\\ \\ 
  
-==== Correspondence and timings for review of submissions ​====+=== Correspondence and timings for review of submissions ===
 Receipt of your application will be notified using the email address you supplied. If you have Receipt of your application will be notified using the email address you supplied. If you have
 not received an electronic confirmation of your submission within 10 working days please not received an electronic confirmation of your submission within 10 working days please
-contact ​swiftinfo@nshd.mrc.ac.uk.+[[mrclha.swiftinfo@ucl.ac.uk|contact us]]
  
-The LHA/NSHD Data Sharing Committee meets once a month to assess all new applications+The LHA/NSHD Data Sharing Committee meets regularly ​to assess all new applications
 to use NSHD data. In normal circumstances a decision will be taken by the LHA/NSHD Data to use NSHD data. In normal circumstances a decision will be taken by the LHA/NSHD Data
-Sharing Committee within two months ​of receipt of the proposal, however this is dependent+Sharing Committee within two weeks of receipt of the proposal, however this is dependent
 upon the timing of the original proposal in relation to the meetings. Applicants will be upon the timing of the original proposal in relation to the meetings. Applicants will be
 notified by email if their application to use the data will be delayed beyond these time lines. notified by email if their application to use the data will be delayed beyond these time lines.
 +\\ \\ 
  
-==== Rejected proposals and appeals procedure ​==== +=== Rejected proposals and appeals procedure === 
-In the unusual situation that the LHA/NSHD Data Sharing Committee ​decides not to +In the unusual situation that the LHA/NSHD Data Sharing Committee ​cannot immediatley ​ 
-approve a proposal, the external researcher can appeal to the Risk Management Sub- +approve a proposal, the external researcher can appeal, in the first instance  ​to the Director 
-Committee ​of the LHA/NSHD Steering Committee. Full details of the appeals procedure will+of the LHA.  The Director may decide to grant the appeal or to refer it to an external 
 +independent body. Full details of the appeals procedure will
 be supplied to the applicants should this prove necessary. be supplied to the applicants should this prove necessary.
  
-==== Collaborative working ==== +Facilitated collaborations are required in the following circumstances and
-When the LHA/NSHD Data Sharing Committee approves a proposal it will recommend the +
-level of collaboration required with the NSHD study team. The collaboration required takes +
-into account the quality, sensitivity or amount of data/​meta-data requested, the extent of +
-biomedical data requested, and the scientific investments of the NSHD study team and their +
-key specialist collaborators +
-The title and description of all approved projects will be made available on the NSHD +
-website to registered users. +
- +
-A NSHD co-ordinator may or may not be assigned to a research project by the +
-LHA/NSHD data Sharing Committee. Research projects requiring access to limited curated +
-and quality assured data that contain little biomedical, specialist or sensitive data and do +
-not significantly overlap with the study team’s scientific objectives may not require a NSHD +
-co-ordinator. Please see the NSHD website for further information on the current research +
-objectives (http://​www.nshd.mrc.ac.uk/​research.aspx). +
- +
-Facilitated collaborations between the external researcher and the NSHD study +
-team are encouraged. This means that a NSHD co-ordinator (either from the study team or +
-one their key expert collaborators) is assigned to help the external scientist make the best +
-use of the NSHD archive, advise on interpretation of a specialist database, or supervise the +
-use of sensitive or restricted data. In some circumstances this may lead to a full scientific +
-collaboration. ​Facilitated collaborations are required in the following circumstances and+
 may involve additional conditions for use of the data: this list is indicative rather than may involve additional conditions for use of the data: this list is indicative rather than
 exhaustive. exhaustive.
-  * Proposals that require access to a specialist database created by a key collaborator or have required significant investments in time by the study team. +  * Proposals that require access to a specialist database created by a key collaborator or have required significant investments in time by the study team 
-  * Proposals that require access to sensitive data. Sensitive data include, but are not limited to, the cause and date of death of a study member, data on residential or emigration history, and medical and other information with small cell counts (e.g. some ICD hospital admissions, or childhood enuresis variables). +  * Proposals that require access to sensitive data. Sensitive data include, but are not limited to, the cause and date of death of a study member, data on residential or emigration history, cancer registration information or other data obtained from NHS Digital, and medical and other information with small cell counts (e.g. some ICD hospital admissions, or childhood enuresis variables) 
-  * Proposals requiring access to data or meta-data that have not yet been through vigorous quality ​assurances ​protocols in place and will require a significant amount of time to check and/or clean. +  * Proposals requiring access to data or meta-data that have not yet been through vigorous quality ​assurance ​protocols in place and will require a significant amount of time to check and/or clean 
-  * Proposals requiring access to extensive biomedical data or that significantly overlap with the current scientific programmes of the NSHD study team. +  * Proposals requiring access to extensive biomedical data 
-  * Proposals from researchers outside the UK.+  * Proposals from researchers outside the UK