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- | [[:home|{{:MRC-LHA-header-graphic.png}}]] | + | ==== Confidentiality Form ==== |
+ | ---- | ||
+ | The following text is from the PDF version of the form. Please download and complete the form: | ||
+ | * {{ :nshd: | ||
- | === Confidentiality Form === | + | Once completed, please upload the forms to [[https:// |
+ | \\ | ||
+ | \\ | ||
+ | Remember that a Data Sharing Agreement must be in place between your research institution and the LHA and you must sign and return a Confidentiality Form before any data extracts can be provided to you. | ||
+ | \\ | ||
- | The following text is from the PDF version of the form. To download and complete the form for submission, please use this | + | ---- |
- | {{nshd: | + | |
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- | To see where this form fits in the overall NSHD Data Sharing Process see [[nshd: | + | |
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- | **// | + | |
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- | The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the MRC National Survey of Health and Development (NSHD) which comprises personal information pertaining to study members provided under strict confidence to the NSHD research team. The details being made available to you either in data form or digital copies from the original forms must be treated in strict confidence. Your University has signed a legal agreement with UCL regarding your access to the data. The main conditions are presented below to ensure that confidentiality can be maintained. | + | |
+ | The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the MRC National Survey of Health and Development (NSHD) which comprises personal information pertaining to study members provided under strict confidence to the research team. The details being made available to you either in data form or as digital copies from the original forms must be treated in strict confidence. If you are a researcher external to UCL, a legal agreement | ||
+ | has been signed with UCL regarding your access to the data. This form lists the main conditions that ensure that the risks to the confidentiality of NSHD study members can be maintained at acceptable levels. You must sign this form before you will be allowed access to NSHD data. In signing this form, you agree to abide by all conditions of access set out below and elsewhere. | ||
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- The LHA must approve data access for all individuals. You may not allow data files or descriptions of the data to be accessible by anyone not mentioned in the legal agreement. | - The LHA must approve data access for all individuals. You may not allow data files or descriptions of the data to be accessible by anyone not mentioned in the legal agreement. | ||
- | - The LHA must check the draft of any article | + | - Any articles |
- | - All NSHD data files must be stored | + | - All NSHD data files must be stored |
- | - When the research project is complete or a paper in press, we expect to receive all the derived variables created using NSHD data with the associated coding and description files. The LHA will retain a copy of the data and documentation provided to you, and will archive any derivations or special coding made by you. We can resupply should you wish to resume research on the data following approval for a subsequent project. | + | - The original respondent identifiers are excluded from all data sets supplied to you. However, where it is necessary to obtain details from forms or other data for individual members, we can provide the identifiers for specific records to allow information to be retrieved and linked. |
- | - From time to time we will ask you to confirm the status of your project. | + | \\ |
- | - The original respondent identifiers are excluded from the data set supplied to you. However, where it is necessary to obtain details from forms or other data for individual members, we can provide the identifiers for specific records to allow information to be retrieved and linked. | + | The LHA must be informed of papers in press and sent a full reference when the paper |
- | | + | is published. |
- | + | Publications using NSHD data are expected to be open access and NSHD DOIs should | |
- | **MRC National Survey of Health | + | be referenced in all publications. See http://nshd.mrc.ac.uk/ |
- | MRC Unit for Lifelong Health and Ageing at UCL\\ | + | identifiers/ |
- | 33 Bedford Place London WC1B 5JU** | + | ---- |
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- | LHA Confidentiality Form (Last updated 28/11/2017) | + | |
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- | Please sign below and complete contact details: | + | |
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- | I agree to the conditions above for use and access | + | |
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- | **Signature Date** | + | |
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- | **Contact Details**: | + | |
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