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- | === Confidentiality Form === | + | ==== Check list ==== |
- | The following | + | In order to access NSHD data, you need to make sure the following |
- | {{nshd:Confidentiality-form-v6.pdf | + | - Data Security Training (Existing users need to have completed |
+ | - Confidentiality Form (Only needed on first application to the NSHD) | ||
+ | - [[nshd:dsagreement|Data Sharing Agreement]] (Only applicable for institutions with no prior data sharing with the NSHD) | ||
- | To see where this form fits in the overall NSHD Data Sharing Process see [[nshd:submission | + | Once these have been completed, please upload your documents to: [[https:// |
+ | ---- | ||
- | **// | + | ==== Data Security Training ==== |
- | The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the MRC National Survey of Health and Development (NSHD) which comprises personal information pertaining to study members provided under strict confidence to the NSHD research team. The details being made available to you either in data form or digital copies from the original forms must be treated in strict confidence. Your University has signed a legal agreement with UCL regarding your access to the data. The main conditions are presented below to ensure that confidentiality can be maintained. | + | ===New Users=== |
- | - The LHA must approve data access | + | In order to access |
- | - The LHA must check the draft of any article or other output before submission to ensure that study members cannot | + | |
- | - All NSHD data files must be stored according to the provisions of the LHA Research Information Governance Policy (summary attached). This specifically prohibits the use of unencrypted portable digital storage devices. Any loss or disclosure of NSHD data must be reported within 24 hours to the LHA Director (< | + | |
- | - When the research project is complete or a paper in press, we expect to receive all the derived variables created using NSHD data with the associated coding | + | |
- | | + | |
- | | + | |
- | | + | |
- | **MRC National Survey of Health and Development\\ | + | If not already registered, users will need to register for an e-LfH learning account with their academic email address. |
- | MRC Unit for Lifelong Health and Ageing at UCL\\ | + | |
- | 33 Bedford Place London WC1B 5JU** | + | \\ \\ |
+ | **Please note** that non-UK applicants may need to pay a fee to access the training module. This should be accounted for if your data request is part of a grant application. | ||
+ | \\ \\ | ||
- | LHA Confidentiality Form (Last updated 28/11/2017) | + | Once the assessment has been passed, please [[https://forms.office.com/ |
- | Please sign below and complete contact details: | + | If you have already completed the Data Security Awareness training module (or an equivalent) in the past 12 months, please [[https:// |
+ | \\ \\ | ||
- | I agree to the conditions above for use and access to the MRC NSHD data and details from forms. | + | {{nshd: |
- | **Signature Date** | + | \\ |
- | **Contact Details**: | ||
- | First name: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | |
+ | All researchers wishing to access data are required to undertake **annual** training in Information Governance. | ||
+ | * [[https:// | ||
- | Surname: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | ---- |
- | Address: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | ==== Confidentiality Form ==== |
- | %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | The following text is from the PDF version of the form. Please download and complete the form: |
+ | * {{ : | ||
- | Post Code: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | Once completed, please upload the forms to [[https:// |
+ | \\ | ||
+ | \\ | ||
+ | Remember that a Data Sharing Agreement must be in place between your research institution and the LHA and you must sign and return a Confidentiality Form before any data extracts can be provided to you. | ||
+ | \\ | ||
- | City: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | ---- |
- | Tel: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | + | The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the MRC National Survey of Health and Development (NSHD) which comprises personal information pertaining to study members provided under strict confidence to the research team. The details being made available to you either in data form or as digital copies from the original forms must be treated in strict confidence. If you are a researcher external to UCL, a legal agreement |
+ | has been signed with UCL regarding your access to the data. This form lists the main conditions that ensure that the risks to the confidentiality of NSHD study members can be maintained at acceptable levels. You must sign this form before you will be allowed access to NSHD data. In signing this form, you agree to abide by all conditions of access set out below and elsewhere. | ||
+ | \\ | ||
+ | - The LHA must approve data access for all individuals. You may not allow data files or descriptions of the data to be accessible by anyone not mentioned in the legal agreement. | ||
+ | - Any articles or other output produced by you must not enable the identify of individuals to be ascertained and must not contain tables where the risk of re- identification is unacceptable, | ||
+ | - All NSHD data files must be stored on secure file systems maintained by your organisation. This specifically prohibits the storage of NSHD data on portable digital storage devices such as laptops, memory sticks, or other portable media. Any loss or threat to the disclosure of NSHD data must be reported to the LHA Director or LHA Head of Data Services within 24 hours. | ||
+ | - The original respondent identifiers are excluded from all data sets supplied to you. However, where it is necessary to obtain details from forms or other data for individual members, we can provide the identifiers for specific records to allow information to be retrieved and linked. Original respondent identifiers can only be kept on our premises and must remain in complete confidence. | ||
+ | \\ | ||
+ | The LHA must be informed of papers in press and sent a full reference when the paper | ||
+ | is published. This information should be sent to MRCLHA.Swiftinfo@ucl.ac.uk. | ||
+ | Publications using NSHD data are expected to be open access and NSHD DOIs should | ||
+ | be referenced in all publications. See http:// | ||
+ | identifiers/ | ||
+ | ---- | ||
- | Email: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ | ||