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nshd:confform [18/01/2018 @ 14:20]
p.curran
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 [[:​home|{{:​MRC-LHA-header-graphic.png}}]] [[:​home|{{:​MRC-LHA-header-graphic.png}}]]
  
-=== Confidentiality Form === +==== Confidentiality Form ==== 
 +----
 The following text is from the PDF version of the form.  To download and complete the form for submission, please use this The following text is from the PDF version of the form.  To download and complete the form for submission, please use this
-{{nshd:Confidentiality-form-v6.pdf | link}}+{{ :nshd:confidentialityform-v8.pdf |link}}
  
-To see where this form fits in the overall NSHD Data Sharing ​Process see [[nshd:​submission | here]]+Remember that a Data Sharing ​Agreement must be in place between your research institution and the LHA and you must sign and return a Confidentiality Form before any data extracts can be provided to you.
  
 +To see where this form fits in the overall NSHD Data Sharing process see [[nshd:​submission | here]]\\ ​
 +\\ 
 +----
  
-**//​Confidentiality of Data for External Users//** +The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the National Survey of Health and Development (NSHD)which comprises personal information pertaining to study members provided under strict confidence to the research team. The details being made available to you either in data form or as digital copies from the original forms must be treated in strict confidence. ​If you are a researcher external to UCL, a legal agreement ​has been signed ​with UCL regarding your access to the data. This form lists the main conditions ​that ensure that the risks to the confidentiality ​of NSHD study members ​can be maintained ​at acceptable levels. You must sign this form before you will be allowed access to NSHD data. In signing this form, you agree to abide by all conditions of access set out below and elsewhere.
- +
-The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the MRC National Survey of Health and Development (NSHD) which comprises personal information pertaining to study members provided under strict confidence to the NSHD research team. The details being made available to you either in data form or digital copies from the original forms must be treated in strict confidence. ​Your University has signed ​a legal agreement with UCL regarding your access to the data. The main conditions ​are presented below to ensure that confidentiality can be maintained.+
  
   - The LHA must approve data access for all individuals. You may not allow data files or descriptions of the data to be accessible by anyone not mentioned in the legal agreement.   - The LHA must approve data access for all individuals. You may not allow data files or descriptions of the data to be accessible by anyone not mentioned in the legal agreement.
-  - The LHA must check the draft of any article ​or other output ​before submission ​to ensure that study members cannot ​be identified ​and to correct any misleading information that could damage ​the reputation ​of NSHD+  - Any articles ​or other output ​produced by you must not enable the identify of individuals ​to be ascertained ​and must not contain tables where the risk of re-identification is unacceptable,​ e.g. tables with individual cell counts less than ten
-  - All NSHD data files must be stored ​according to the provisions of the LHA Research Information Governance Policy (summary attached). This specifically prohibits the use of unencrypted ​portable digital storage devices. Any loss or disclosure of NSHD data must be reported ​within 24 hours to the LHA Director ​(<​n.chaturvedi@ucl.ac.uk>​ ) or LHA Head of Data Services ​(<​p.curran@ucl.ac.uk>​ ) +  - All NSHD data files must be stored ​on secure file systems maintained by your organisation. This specifically prohibits the storage ​of NSHD data on portable digital storage devices ​such as laptops, memory sticks, or other portable media. Any loss or threat to the disclosure of NSHD data must be reported to the LHA Director or LHA Head of Data Services ​within 24 hours
-  - When the research project is complete or a paper in press, we expect to receive all the derived variables created using NSHD data with the associated coding and description files. The LHA will retain a copy of the data and documentation provided to you, and will archive any derivations or special coding made by you. We can resupply should you wish to resume research on the data following approval for a subsequent project. +  - The original respondent identifiers are excluded from all data sets supplied to you. However, where it is necessary to obtain details from forms or other data for individual members, we can provide the identifiers for specific records to allow information to be retrieved and linked. ​Original respondent ​identifiers can only be kept on our premises and must remain in complete confidence.
-  - From time to time we will ask you to confirm the status of your project+
-  - The original respondent identifiers are excluded from the data set supplied to you. However, where it is necessary to obtain details from forms or other data for individual members, we can provide the identifiers for specific records to allow information to be retrieved and linked. ​Such identifiers can only be kept on our premises and must remain in complete confidence.+
   - The LHA Director must be informed of papers in press and sent a full reference when the paper is published. Publications using NSHD data are expected to be open access; an explanation is required if this is not possible.   - The LHA Director must be informed of papers in press and sent a full reference when the paper is published. Publications using NSHD data are expected to be open access; an explanation is required if this is not possible.
  
-**MRC National Survey of Health and Development\\ +Please sign below and complete contact details ​on the reverse of this form:
-MRC Unit for Lifelong Health and Ageing at UCL\\ +
-33 Bedford Place London WC1B 5JU** +
- +
-LHA Confidentiality Form (Last updated 28/​11/​2017) +
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-Please sign below and complete contact details+
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-I agree to the conditions above for use and access to the MRC NSHD data and details from forms. +
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-**Signature Date** +
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-**Contact Details**:​ +
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-First name: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_ +
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-Tel: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_+I agree to the conditions above for use and access to the NSHD data and details from forms. 
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-Email: %%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%%%__%%_