Confidentiality Form

The following text is from the PDF version of the form. To download and complete the form for submission, please use this link

Remember that a Data Sharing Agreement must be in place between your research institution and the LHA and you must sign and return a Confidentiality Form before any data extracts can be provided to you.

To see where this form fits in the overall NSHD Data Sharing process see here

The MRC Unit for Lifelong Health and Ageing at UCL (LHA) runs the National Survey of Health and Development (NSHD), which comprises personal information pertaining to study members provided under strict confidence to the research team. The details being made available to you either in data form or as digital copies from the original forms must be treated in strict confidence. If you are a researcher external to UCL, a legal agreement has been signed with UCL regarding your access to the data. This form lists the main conditions that ensure that the risks to the confidentiality of NSHD study members can be maintained at acceptable levels. You must sign this form before you will be allowed access to NSHD data. In signing this form, you agree to abide by all conditions of access set out below and elsewhere.

  1. The LHA must approve data access for all individuals. You may not allow data files or descriptions of the data to be accessible by anyone not mentioned in the legal agreement.
  2. Any articles or other output produced by you must not enable the identify of individuals to be ascertained and must not contain tables where the risk of re-identification is unacceptable, e.g. tables with individual cell counts less than ten.
  3. All NSHD data files must be stored on secure file systems maintained by your organisation. This specifically prohibits the storage of NSHD data on portable digital storage devices such as laptops, memory sticks, or other portable media. Any loss or threat to the disclosure of NSHD data must be reported to the LHA Director or LHA Head of Data Services within 24 hours.
  4. The original respondent identifiers are excluded from all data sets supplied to you. However, where it is necessary to obtain details from forms or other data for individual members, we can provide the identifiers for specific records to allow information to be retrieved and linked. Original respondent identifiers can only be kept on our premises and must remain in complete confidence.
  5. The LHA Director must be informed of papers in press and sent a full reference when the paper is published. Publications using NSHD data are expected to be open access; an explanation is required if this is not possible.

Please sign below and complete contact details on the reverse of this form:

I agree to the conditions above for use and access to the NSHD data and details from forms.